AEAL-TL Profile

 

ASSOCIAÇÃO EMA AFEITA LEPRA TIMOR-LESTE

Aldeia 04 Ailele Hun, Suco Bemori, Posto Administrativo Nain Feto, Díli, Timor-Leste.

Número de Telemóvel : +670 77074821

                                                   E-Mail: asosiasaunlepra@gmail.com

AEAL-TL Profile

Assosiasaun Ema Afeita Lepra Timor-Leste (AEAL-TL) is a newly establish association in Timor-Leste. AEAL-TL functions as a local and national association that offers various services for people affected by Hansen disease to reach the goal of zero leprosy and zero discrimination. This association is mainly founded by people who used to affect by Hansen disease. The motivation of the existence of AEAL TL is the life experience of the founders and the leprosy situation in Timor-Leste; many people who are currently affected by Hansen disease are dropping out from the MDT treatment, and many children are also affected by Hansen disease in this present in Timor-Leste. 

The localisation of AEAL-TL is in Rua Bemmori, Bemori, Nain Feto, Dili, Timor-Leste.

AEAL-TL Vision is that people affected by Hansen disease live in prosperity and independent. People affected by Hansen disease is integrated and participated effectively without any stigma or discrimination in the society of Timor-Leste.

AEAL-TL Mission is promoting equity and equality in terms of the opportunities for people affected by Hansen disease to access any aspects of life and maximise their participation across the society in Timor-Leste.

AEAL-TL Principles – AEAL-TL is a non-profit association that founded based on the values such as inclusive, transparency, honesty and accountable regarding service delivery to people affected by Hansen  and people with disability affected by Hansen  disease.

AEAL-TL Objective:

1.     AEAL-TL aims to advocate to the public to raise awareness about the human rights of people and rights of people affected by Hansen disease to be treated equally without stigma or discrimination in the society across Timor-Leste.

2.     AEAL-TL aims to maximise the integration and participation of people affected by Hansen disease across all aspect of life without stigma or discrimination in the society of Timor-Leste.

3.     AEAL-TL aims to empower people affected by Hansen disease and their family economically to have sustainable income to live independently.

4.     AEAL-TL aims to enhancing rehabilitation program throughout range of activities to support the integration of people affected by Hansen disease in the communities across Timor-Leste.

AEAL-TL Programs:

To respond to the global strategy of zero leprosy, zero discrimination and zero disability, the AEAL-TL association has a Program designed based on the CBR Matrix such as: Health, Livelihoods and Empowerment.

1.     Health – Promotion and Rehabilitation

·       Coordinating integrated services about promotional tools with Ministry of Health and relevant stakeholders regarding to Hansen disease or Leprosy issue in Timor-Leste.

·       Providing counselling service for people affected by Hansen disease for stress management during the period of undertaking MDT treatment.

·       Providing a basic rehabilitation training for people affected by Hansen disease to enable them with self-care skills.

·       Providing sensibilization in regard to Leprosy issue to raise awareness regard to Leprosy awareness to individuals affected by Hansen disease, their families and  the community.                                                                                                                                                               

2.     Livelihood – Skill Development

·       Providing Livelihood skill training like Microenterprise to people affected by Hansen disease to help them establish small business.

·       Providing training about business plan to people affected by Hansen disease to enable them identify market opportunity in the society.

·       Providing basic training like computer skills, financial management training to people affected by Hansen disease to enable them became entrepreneurs in the future.

3.     Empowerment – Advocacy and Communication; Self-Help-Group

·       Advocating to the Government of Timor Leste to include Leprosy issue in the National Disability Action Plan.

·       Advocating to the Health sector to integrate best practice service to the  Leprosy issue.

·       Providing assistance to people affected by Hansen disease establishing self-help group to maximize their participation in the society and freely express their opinions.


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